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Below we've compiled what we feel are the most usual documents on public involvement.

There is an archive of quotations about the policy context behind the involvement agenda; taken from Government, best practice guides, publications and reports / papers we've produced or shared, which you might find useful. pdfPlease access it here.

Other places for involvement resources include: Participation Compass, NHS Involvement, NIHR CRN, CHAIN.

We always welcome feedback so please get in touch with This email address is being protected from spambots. You need JavaScript enabled to view it. or 0115 7484216 if you have comments or would like to add additional ideas for more how to guides.

Click on the read more button below to view our list of useful document.

Evidence Library 

pdfA summary of the benefits of Public Involvement in research - CLAHRC NDL

pdfBibliography on public involvement in the NHS - King's Fund

pdfCollection of journal abstracts on Public Involvement in health research - Invonet

pdfBibliography of books and journal papers about Public Involvement in health research - Boote 

pdfLiterature review on why people take part in research studies or refuse to do so - key messages - Alison Monk, Thames Valley 

pdfReferences on Public Involvement - NIHR Involve

pdfCase studies of involvement in primary care research - NIHR

pdfUsing patient experieinces to improve safety - East Midlands Patient Safety Collaberative

Money 

pdfReceipt for cash participation payment made to public representative - SDO Long stay Project

pdfInterim expenses policy - NHS England 

pdfPayment rates at NIHR Involve - NIHR Involve

pdfWhat researchers need to know about paying people - NIHR Involve

pdfWhat public representatives need to know about payments for involvement - NIHR Involve

pdfRules for Participation Payments -NIHR Clinical Research Network Mental Health

pdfPayment Policy - NIHR Involve

pdfWhat you Need to Know About Payments for Involvement - NIHR Involve

pdfBitesize guide to budgeting for participation - NHS England

pdfPayments Policy - CRN

pdfPrinciples and practice of service user payments/expenses - Department of Health

pdfPayments Policy - NHS Leadership Academy

pdfFrequently asked questions about lay contributor payments - NICE

pdfLay contributor payments policy - NICE

pdfPayment rates (2009) - NIHR


How to read and write 

pdfGuide to finding and reading research - NIHR MHRN

pdfHow to write Easy Read Materials - DH 

pdfHow to present information in an accessible format - SCIE

pdfAdvice on writing for people who have dementia - Innovations in Dementia 

pdfA glossary of terms used in evaluation - NPC and Clinks

pdfAdvice on writing plain English - CLAHRC NDL

pdfExplaining the jargon and acronyms that are often used in health reseach - CLAHRC NDL

pdfGuide to finding and reading research


How to consult the community 

pdfCommunity Empowerment Discussion Toolkit - Improvement East

pdfCrowd wise - a participative decision making process - New Economics Foundation

pdfHow to run a focus group - CLAHRC NDL

pdfGuide to engagement techniques - NHS Derby City PCT

pdfGuide to engagement techniques - NHS Leicester City

pdfDirectory of community groups in Lincolnshire 2010 - Voluntary Centre Services Lincoln

pdfGuide to engagement techniques - Derby PCT

pdfGuide to engagement techniques - Leicester City NHS

pdfTimeline for consultation - Involvement

pdfPrinciples for public engagement - Participation Cymru (Wales)

pdfHealthwatch Lincolnshire Seldom Heard Voices August 2015


Applying for research funding

pdfGuidance for research funding applicants on Confidentiality - NIHR Central Commissioning Facility

pdfDraft arrangements for public representative co-applicants for research funding - NIHR 

pdfRole description and person specification for service user representative/project advisor on a study/trial steering group, or on a group (informal or formal) developing a research proposal - MHRN 

pdfAdvice on how to recruit Public Representatives on to research advisory boards and funding approval panels - NIHR Involve

pdfTemplate for public representative to use when assessing a research proposal - CLAHRC East Midlands

pdfTemplate for lay review of a research funding application - CLAHRC East Midlands

docxPPI during the development of grant applications


Recruiting and selecting staff

pdfBrief for PPI reps who volunteer to sit on staff recruitment interview panels - Nottingham University Hospitals NHS Trust

pdfFlowchart on how to involve people in your staff recruitment process and interview panel - Nottingham University Hospitals NHS Trust

pdfEmploying and supporting service user researchers - University of London

Inviting the public to get involved

pdfMenu of ways in which public representatives can get involved in health research - Mental Health Research Network

pdfTemplate for a general introductory leaflet on getting involved in medical research - Apostolos Fakis, Derby Hospitals NHS Foundation Trust
pdfGeneric advertisement to recruit service user representative/project advisor to mental health research activities - MHRN 

pdfLeaflet inviting public representatives to get involved in research - Derby Hospital NHS Foundation Trust

pdfLeaflet inviting members of the public to get involved in research - Leicester City Clinical Commissioning Group

pdfPlan for public participation and engagement in research - NIHR

pdfSample patient information sheet - CLAHRC EM 

Conduct and Confidentiality

pdfI consent to being photographed and filmed - CLAHRC - NDL

pdfInvolvement agreement - MHRN

pdfPrinciples and standards for public involvement in research - NIHR Involve

pdfGround rules for everyone who attends an academic seminar -MindTech Healthcare Technology Cooperative

pdfConfidentiality statement for public representatives advising research projects - MindTech Healthcare Technology Cooperative

pdfComplaints procedure for public representatives - PenCLAHRC

pdfI promise to keep information confidential - CLAHRC

pdfCode of Conduct for Public Representatives - PenCLAHRC


Role descriptions for PPI reps and application forms

pdfPatient Research Ambassadors - NIHR CRN

pdfThe Role of the Patient/Consumer in Establishing a Dynamic Clinical Research Continuum: Models of Partient/Consumer Inclusion - The National Working Group on Evidence-Based Health Care

pdfRole description and person specification for service user reseracher - MHRN

pdfInterview questions for service user researcher - MHRN

pdfGuidance notes for filling out an application form for service user representative/project advisor - MHRN 

pdfApplication form for service user representative/project advisor - MHRN 

pdfApplication form for service user researcher - MHRN

pdfLay assessor role summary - NIHR Nottingham Hearing Biomedical Research Unit 


Training

pdfTraining needs analysis form for service user representative/project advisor - MHRN 

pdfFinal report of a study evaluating a training course for Public Representatives to equip them to participate in health research - TRUE project

pdfTraining for Service User Involvement in Research Report - NIHR Involve

pdfLearning Development summary and recommendations - NIHR INVOLVE

Carers

pdfGood practice for involving carers in research - NIHR MHRN

pdfGood Practice for Involving Carers in Research - NIHR Mental Health Research Network

pdfA guide for people caring for someone with/or a mental health condition or substance misuse - Nottinghamshire Healthcare NHS Trust

pdfInvolving older people in research - Macmillan / University of Nottingham


Tracking involvement

pdfReport on a mystery shopper project to find out if hospital reception staff can direct patients asking about research - NIHR CRN 

pdfInvolvement evaluation form for service user representative/project advior - MHRN

pdfSample contact sheet for service user representative/project advisor - MHRN

pdfConfidential evaluation form for service user representatives/project advisors involved in a study or trial - MHRN

pdfReport on Carrying out Mystery Shopper Exercises - NIHR

Guidance

pdfWhat good PPI should look like (East Midlands PPI Senate)

pdfGuidance to Consider When Involving Patient and Public Representatives on Trust Committees and Meetings - NUH

pdfGuidance for health researchers on how to involve Public Representative - NIHR Involve

pdfGuidance for Public Representatives on how to get involved in health research - NIHR Involve

pdfGuidance for senior investigators on how to involve Public Representatives in your research - NIHR Involve

pdfMentoring relationships between a public representative and a researcher: 10 top tips - CLAHRC NDL

pdfCreate a mentoring relationshop between a public representative and a researcher - CLAHRC NDL

pdfUser Driven Commissioning - Disability Rights UK/Shaping our Lives

pdfBitesize guide participation in commissioning - NHS England

pdfBitesize guide to governance in participation - NHS England

pdfBitesize guide to planning for participation - NHS England

pdfClinical trials what they are and what they're not - NIHR

pdfHow to get involved - NIHR

pdfPoster on research participation - NIHR

pdfWhat, how and why your records saves lives - NIHR

pdfGuidence for involving people with experience of mental health problems - NIHR

pdfQuestions to ask when doing an academic review of a research proposal - CLAHRC-EM

pdfQuestions to ask when doing a lay review of a research proposal - CLAHRC-EM

pdfCo-producing services - NHS Wales (Cymru)

docxAn example of a PPI strategy - Leicester Cardiovascular Biomedical Research Unit

pdfEngaging the public in difficult decisions - NHS Clinical Commissioners

pdfGuidence for participants at the of a study - Health Research Authority 

docxPublic contributor role requirements - West of England AHSN