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Parades Advance Planning Booklet Front CoverLynda, from Nottingham has lived with Bipolar Disorder for more than 20 years, and took part in the expert patient groups for PARADES;
“Better care for people with Bipolar Disorder is something very close to my heart. Taking part in the Psychoeducation sessions helped me immensely and having an advance statement is something all people with this illness, and other conditions should consider. The Advance Planning Guide is a really useful and practical tool which could help me and many others like me.”

What?
A cross-sector, multi-agency collaboration led by EMAHSN. Service users are at the heart of this transformational project to create the first ever advance planning guide for people with Bipolar Disorder. The guide assists with Advance Planning and provides guidance on the Mental Capacity Act.

Why?
Bipolar Disorder is in the top 20 causes of years lost due to illness in the world among all health conditions. It affects 1.4% of the population and lasts for the rest of the person’s life.


What’s the impact?

  • EMAHSN worked in collaboration with the National Institute for Health Research (NIHR) Collaboration for Leadership in Applied Health Research and Care: East Midlands, NICE, Bipolar UK, NIHR, higher education institutions and healthcare providers.
  • Following coordinated launch events in Nottingham and Manchester the guide has now been provided to all new Bipolar UK members, (approximately 3,000 per year nationally)
  • The booklet was also accessed via our website over 50,000 times
  • Feedback has been overwhelmingly positive, with 95% of readers saying they have found the booklet useful and eight out of 10 would recommend it to friends and family
  • We worked with The Nottingham Recovery College which ran its first course based on the booklet

What’s next?
  • This low cost project has the potential to be scaled nationwide, empowering patients to take control of their welfare